Patient Advocacy

Working Together to Help Melanoma Patients Globally

The Melanoma International Foundation hit the road recently for two important melanoma meetings in Boston. The first was the 2016 Global Coalition for Melanoma Patient Advocacy. The Melanoma Research Foundation […]

MIF: Your Concierge for the Melanoma Journey

Have you ever traveled to a large city or foreign country that you’ve never been to before? It can often feel overwhelming as sights, sounds and smells engulf your senses. […]

Do No Harm

Before becoming a doctor, medical students must take the Hippocratic Oath. The initial statement of the oath is: “First, do no harm.” As a patient navigator, I also take this […]

Never Walk This Path Alone

Recently, I had the privilege of sharing dessert, in Philadelphia, with a caregiver named Stefan. As we were looking out at the historic buildings and talking about life in the […]

Warrior or Weatherers? How Best to Deal with Melanoma Cancer

I’ve always been sensitive to the wording used casually to describe cancer patients. No matter the disease, it seems like others and the media put undue pressure on patients to […]

Compassionate Use Isn’t Compassionate to All

The much reported story of Josh, a 7 year old child who needed an antibiotic drug not yet FDA approved to save his life, had a happy ending where his […]

Expanded Access Program (EAP): Patients Are a Virtue!

A happy day arrived last week for melanoma patients! Merck announced the promising melanoma therapy, PD1, is going to be made available to those who have failed prior therapies. This […]

Schmidt’s Scary Ordeal

We, at Melanoma International, are always disheartened to hear of another melanoma diagnosis. Mike Schmidt’s stage III melanoma has certainly changed his attitude about the sun (“it is evil”} and […]

A Mission Springing from the Heart, but Focused with the Brain

Charities often spring up from a heartfelt mission because of a life changing event. In the case of MIF, it was from my experience with melanoma that shook me to […]

Don’t Be Afraid to Disagree with Your Doctor

I really thought I was an expert at navigating an illness, until my grandson was diagnosed with a rare disorder. As I hit the web for information, I found nothing […]

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