Patient Advocacy

Never Walk This Path Alone

Recently, I had the privilege of sharing dessert, in Philadelphia, with a caregiver named Stefan. As we were looking out at the historic buildings and talking about life in the […]


Warrior or Weatherers? How Best to Deal with Melanoma Cancer

I’ve always been sensitive to the wording used casually to describe cancer patients. No matter the disease, it seems like others and the media put undue pressure on patients to […]

Nick Auden

Compassionate Use Isn’t Compassionate to All

The much reported story of Josh, a 7 year old child who needed an antibiotic drug not yet FDA approved to save his life, had a happy ending where his […]

Expanded Access Program (EAP): Patients Are a Virtue!

A happy day arrived last week for melanoma patients! Merck announced the promising melanoma therapy, PD1, is going to be made available to those who have failed prior therapies. This […]

Mike Schmidt

Schmidt’s Scary Ordeal

We, at Melanoma International, are always disheartened to hear of another melanoma diagnosis. Mike Schmidt’s stage III melanoma has certainly changed his attitude about the sun (“it is evil”} and […]

A Mission Springing from the Heart, but Focused with the Brain

Charities often spring up from a heartfelt mission because of a life changing event. In the case of MIF, it was from my experience with melanoma that shook me to […]


Don’t Be Afraid to Disagree with Your Doctor

I really thought I was an expert at navigating an illness, until my grandson was diagnosed with a rare disorder. As I hit the web for information, I found nothing […]


Melanoma Treatment: Finding Your Way

What happens when you blindly follow a GPS to navigate your path? You may get lost and miss the signs along the way! I recently found that my GPS was […]

Affordable Care

Affordable Care: Will It Ever Come to Be?

The Patient Protection and Affordable Care Act will attempt to ease access to health coverage and attempt to strengthen regulations of private health insurance coverage. Much of the law’s key […]


The Problem & Promise of Clinical Trials

Navigating patients one-on-one brings home the overwhelming complexity they face in trying to choose a clinical trial.  Our recent advances in therapy are revolutionary but still limited. They came about […]

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