Patient Advocacy

MIF Staffer Faces Melanoma

For 8 years, I have been managing the largest melanoma awareness event.  Melanoma International Foundation or MIF, brings over 1500 people together to support, encourage and honor loved ones. Our […]

Are Melanoma Clinical Trials for You?

Melanoma Clinical Trials Although we now have some newly discovered therapies for melanoma treatment, the promise for treating melanoma lies in clinical trials; where new agents are tried out in […]

Changing the Melanoma Message

Changing The Melanoma Message After 15 years of dedication to our mission we are still vibrant.  It is you, our supporters, who have kept us thriving.  I was a melanoma […]

Courage With Grace

Maybe this is an old topic, courage in the face of a diagnosis, but it is an important one to be discussed and given thought.  Take John McCain for example […]

Working Together to Help Melanoma Patients Globally

The Melanoma International Foundation hit the road recently for two important melanoma meetings in Boston. The first was the 2016 Global Coalition for Melanoma Patient Advocacy. The Melanoma Research Foundation […]

MIF: Your Concierge for the Melanoma Journey

Have you ever traveled to a large city or foreign country that you’ve never been to before? It can often feel overwhelming as sights, sounds and smells engulf your senses. […]

Do No Harm

Before becoming a doctor, medical students must take the Hippocratic Oath. The initial statement of the oath is: “First, do no harm.” As a patient navigator, I also take this […]

Never Walk This Path Alone

Recently, I had the privilege of sharing dessert, in Philadelphia, with a caregiver named Stefan. As we were looking out at the historic buildings and talking about life in the […]

Warrior or Weatherers? How Best to Deal with Melanoma Cancer

I’ve always been sensitive to the wording used casually to describe cancer patients. No matter the disease, it seems like others and the media put undue pressure on patients to […]

Compassionate Use Isn’t Compassionate to All

The much reported story of Josh, a 7 year old child who needed an antibiotic drug not yet FDA approved to save his life, had a happy ending where his […]

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