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Caregiver Resources, Clinical Trials, Prescription Drug Assistance, Support, Hospice, Hotlines and Forums, Insurance/Financial Assistance, Lodging, Lymphedema, Other Types of Melanoma, Pain Management, Radiation, Suggested Reading, Survivorship, Transportation
National Family Caregivers Association (NFCA)
10400 Connecticut Avenue,
Kensington, MD 20895-3944
Educates, supports, and advocates for the more than 50 million Americans who care for loved ones with a chronic illness, disability, or frailty. NFCA reaches across the boundaries of diagnoses, relationships, and life stages to address the common needs and concerns of all family caregivers.
Family Caregiver Alliance
180 Montgomery Street,
San Francisco, CA 94104
FCA seeks to improve the quality of life for caregivers through education, services, research, and advocacy. FCA’s National Center on Caregiving offers information on current social, public policy and caregiving issues, and provides assistance in the development of public and private programs for caregivers.
The Caregiver Relief Fund
900 South Wabash Avenue
Chicago, IL 60605
A social venture committed to caring for caregivers. Provides resources, assistance and a voice to over 50 million Americans who are currently caregivers to the chronically ill, aged and disabled.
Strength for Caring
The Johnson & Johnson Caregiver Initiative is a pioneer in the emerging field of family caregiver support and StrengthForCaring.com (SFC) is the cornerstone of this important program. SFC is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.
9500 Euclid Avenue R36Cleveland, OH 44195
The 4th Angel Program is part of the Scott Hamilton CARES Initiative. This is a free, national service which provides a one-to-one supportive relationship (phone or email based) to cancer patients and their caregivers. The program has over 400 patient and caregiver mentors who are at least 6 months post treatment, and continues to train more mentors.
Irving, Texas 75015
Organization strives to educate and assure caregivers and oncology teams there are ways to ease the journey’s relentless demands. Goal is to help caregivers emerge on the other end with less stress, more energy and a feeling of accomplishment that they did all they could for their loved ones.
3350 Griffin Road
Fort Lauderdale, FL 33312
A leading provider of information, support and guidance for family and professional caregivers. Founded in 1995as a producer of Today’s Caregiver magazine, the first national magazine dedicated to caregivers. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.
The National Cancer Institute at the National institute of Health
A registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.
Abramson Cancer Center of the University of Pennsylvania
3400 Spruce Street
Philadelphia, PA 19104
Comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances. Information is updated every day and provided at various levels, from introductory to in-depth.
Dermatology & Early Detection
Center for Disease Control (CDC) Centers for Disease Control and Prevention
4770 Buford Hwy NE
Atlanta, GA 30341
Federal agency that provides information on cancer prevention and control.
American Academy of Dermatology
930 E. Woodfield Road
Schaumburg, IL 60173
1445 New York Avenue, NW, Suite 800
Washington, DC 20005
(866) 503-SKIN (7546)
International: (847) 240-1280
Founded in 1938. With a membership of more than 17,000, it represents virtually all practicing dermatologists in the United States, as well as a growing number of international dermatologists. Find free screening locations as well as information on research, diagnosis and treatment.
The Department of Dermatology and Skin Science
University of British Columbia
835 West 10th Avenue
Canada V5Z 4E8
DermWeb is a premier destination for dermatology links and resources on the Web. There are several areas of interest for practicing dermatologists, for dermatology students, and for the general public.
The Skin Cancer Foundation
149 Madison Av.
New York, NY 10016
Educates about skin cancer and its prevention by means of sun protection; as well as the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer, now occurring at epidemic levels.
National Cancer Institute
6116 Executive Boulevard, Suite 300
Bethesda, MD 20892
Prescription Drug Assistance
Needy Meds, Inc.
P.O. Box 219
Gloucester, MA 01931
This service provides information on drugs and offers applications (if available) for financial assistance, coupons for drugs, discount drug cards, free/low cost clinics and government program information.
Together Rx Access Card
Free prescription savings program for qualified enrollees, which provides savings on more than 300 FDA-approved prescription drugs.
Partnership for Prescription Assistance
This program helps uninsured and financially struggling patients get access to nearly 500 healthcare and prescription assistance programs that offer medicines for free or nearly free.
National Conference of State Legislatures
More than 30 states have programs that will give discounts on prescription drugs, often for free. Visit web site to learn more about the various programs state legislatures have developed.
111 Brewster Street
Pawtucket, RI 02860
Patient assistance programs run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles.
P.O. Box 42886
Cincinnati, OH 45242
Advocate in making the patient assistance program journey easier and faster by supplying vital information and help.
The Cancer Support Community
1050 17th Street, NW
Washington DC 20036
An international non-profit dedicated to providing support to people affected by cancer. Services are available through a network of professionally led community-based centers, hospitals, community oncology practices and other non-profits, as well as online.
Fighting Cancer with Hope
9575 Katy Freeway, Suite 428
Houston, Texas 77024
Cancer survivors of more than 50 different types of cancer volunteer for CanCare to provide emotional support to those currently facing a battle with cancer. Family members of survivors provide emotional support to family members of cancer patients.
1715 Yankee Doodle Road
Eagan, MN 55121
Free, personal and private websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.
MyLifeLine.org Cancer Foundation
A 501(c)(3) nonprofit organization that encourages cancer patients and caregivers to create free, customized websites. Our mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.
275 Seventh Ave. Floor 22
New York, NY 10001
National Office serves people with cancer and their loved ones throughout the entire 50 states, Puerto Rico, and the U.S. Virgin Islands.
P.O. Box 1133
Washington, DC 20013-1133
Write to healthfinder.gov at Health and Human Services Department for easy entry point to trustworthy health information.
National Cancer Institute (NCI)
Very comprehensive information from the US Government agency wing of the National Institute of Health (NIH).
A medical education site from a company that helps both consumers and healthcare providers navigate the healthcare community.
Provides information and support to patients and families facing life-threatening illnesses.
Hospice Education Institute
3 Unity Square
Machiasport, Maine 04655
Provides information and education about caring for the dying and the bereaved. Contact for information about good hospice and palliative care; to get referrals to hospices and palliative care organizations in the USA, to discuss issues relating to caring for the dying and the bereaved.
HFA Hospice Foundation of America
1710 Rhode Island Ave, NW
Washington, DC 20036
National Hospice Foundation
1731 King Street, Suite 200
Alexandria, Virginia 22314
Hotlines and Forums
Melanoma International Foundation
Toll free Patient and Family Helpline Forum: Melanoma Forum
Dana Farber Cancer Institute
Family Studies Cancer Risk Line
Information regarding familial cancers
Patient Advocate Foundation
1-800-532-5274 (Mon.-Thurs., 8am-8pm; Fri., 8:30am-7pm EST)
Provides education and legal counseling to cancer patients (relative to a diagnosis) concerning managed care, discrimination, insurance and financial issues.
Hereditary Cancer Center
1-800-648-8133 (Mon.-Fri., 8am-5pm CST)
Studies family-linked cancer. Counseling, information on clinical trials, cancer and hereditary factors.
Cancer Information Service
Sponsored by National Cancer Institute.
Provides information about cancer and cancer-related resources to patients, the public and health professionals. Offers one-on-one smoking cessation counseling and literature. Free publications.
Skin Cancer Foundation
1-800-754-6490 (Mon.-Fri., 9am-5pm EST)
Provides educational materials and information on skin cancer and treatment.
Cancer Research Institute
1-800-992-2623 (Mon.-Fri., 9am-5pm EST)
Provides general cancer resource information. Supports leading-edge research aimed at developing immunologic methods of preventing, treating and curing cancer.
Cancer Information and Counseling Line
(Mon.-Fri., 8:30am-5pm MST)
Provides current medical information and counseling for cancer issues.
Cancer Hope Network
1-877-467-3638 (Mon.-Fri., 9am-5:30pm EST)
One-on-one support offered to cancer patients and their families undergoing cancer treatment from trained volunteers who have survived cancer themselves.
BLOCH Cancer Hotline
Networks persons with cancer and home volunteers with same type of cancer. Free books about cancer.
Chronic Disease Fund
6900 N Dallas Pkwy,
Plano, TX 75024
CDF exists to improve the health and quality of life of patients battling chronic disease, cancer or other life-altering conditions who cannot afford the medications they so desperately need.
P.O. Box 4133
Gaithersburg, MD 20878
The HealthWell Foundation® provides full or partial financial assistance to eligible individuals who cannot afford their insurance co-payments, premiums, deductibles for certain treatments, and other out-of-pocket health care expenses.
Medicare & Medicaid
7500 Security Blvd
Baltimore, MD 21244-1850
Medicare is a federal system of health insurance for people over 65 years of age, low-income individuals and for certain younger people with disabilities.
National Patient Advocate Foundation (NPAF)
725 15th St, NW, 10th Floor
Washington, DC 20005
NPAF provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.
505 E 79th Street
New York, NY 10075
Joe’s House website lists thousands of places to stay across the country near hospitals and treatments centers that offer a discount for traveling patients and their loved ones.
National Association of Hospital Hospitality Houses (NAHHH)
P.O. Box 1439
Gresham, OR 97030
NAHHH serves facilities that provide lodging to patients and families during medical emergencies. Features list of homes located in the US.
Hope Lodge –American Cancer Society
Hope Lodge offers cancer patients and their caregivers a free, temporary place to stay when their best hope for effective treatment may be in another city. Currently, there are 31 Hope Lodge locations throughout the United States. Accommodations and eligibility requirements may vary by location.
Operating five three-bedroom apartments located in midtown Manhattan serving over 1,000 caregivers and patients each year. Miracle House provides temporary housing, meals, and advocacy to caregivers and patients coming to New York City for critical medical treatment.
National Lymphedema Network
116 New Montgomery Street, Suite 235
San Francisco, CA 94105
A non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.
Other Types of Melanoma
Oral Cancer Foundation
3419 Via Lido #205
Newport Beach, CA 92663
The Oral Cancer Foundation is a non-profit 501 (c) (3) public service charity that provides information, patient support, sponsorship of research and advocacy related to this disease. At the forefront of our agenda is to promote solid awareness in the minds of the American public about the need to undergo an annual oral cancer screening and an outreach to the dental community to provide this service as a matter of routine practice.
Ocular Melanoma Foundation
P.O. Box 29261
Richmond, VA 23242-0261
OMF aspires to be the top destination for up-to-date OM-related educational information, a meeting place, and advocacy resource. For doctors and researchers, OMF strives to be the connective tissue, facilitating interdisciplinary cancer research.
American Academy of Pain Management
The largest pain management organization in the nation and the only one that embraces an integrative model of care, which is patient-centered, focuses on the “whole” person, is informed by evidence, and brings together, all appropriate therapeutic approaches to reduce pain and achieve optimal health and healing. The Academy offers continuing education, publications, and advocacy.
American Chronic Pain Association
PO Box 850
Rocklin, CA 95677
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life.
A one-stop repository for print materials, educational resources, and physician tools across the broad spectrum of pain assessment, treatment, and management approaches.
American Society of Radiation Oncology
8280 Willow Oaks Corporate Drive, Suite 500
703-502-1550 or 1-800-962-7876
Web site explains to patients, their families and the public how doctors called radiation oncologists use radiation therapy to treat cancer safely and effectively.
Radiation Therapy Fact Sheet
National Cancer Institute
A fact sheet that defines the different types of radiation therapy and discusses scientific advances that improve the effectiveness of this treatment.
Melanoma: Prevention, Detection and Treatment
By Catherine M. Poole and Dupont Guerry IV, M.D.
A complete and up-to-date guide for anyone newly diagnosed with melanoma and for others who are concerned about detecting and preventing it.
The Emotional Survival Guide for Caregivers
By Barry J Jacobs
Jacobs gives wonderful advice for one of the hardest jobs in the world.
In the Country of Illness : Comfort and Advice for the Journey
By Robert Lipsyte
Anyone who will ever have to negotiate the minefields of today’s medical system while suffering from a serious illness or caring for a loved one will greatly welcome this outstanding guide from the viewpoint of being a patient as well as a caregiver.
The Home Care Guide for Cancer
By American College of Physicians
Written for a broad audience, this easy-to-use workbook was designed for home caregivers, patients, support groups, and education programs; it features easy-to-read type and an index for quick reference. The authors include oncology nurses, social workers, psychologists, physicians, family caregivers, and persons with cancer.
A Physician’s Guide to Pain and Symptom Management in Cancer Patients
By Janet L. Abrahm, M.D.
This book is important for all dimensions of patient care — not just cancer. Every doctor in clinical practice needs this book. Every patient will benefit from it.
What Helped Me Through: Cancer Survivors Share Wisdom and Hope
Edited by Julie K. Silver, MD
Hundreds of survivors from all walks of life share their heartfelt reflections and practical solutions for “getting through” the cancer journey.
The Mindful Way Through Depression
Mark Williams, John Teasdale, Zindel Segal, Jon Kabat-Zinn
A useful guide to achieving emotional balance. Comes with a companion CD of guided meditations.
Dancing in Limbo
by Glenna Halvorsen-Boyd and Lisa K. Hunter
Written by two cancer patients, one with melanoma; addresses in a refreshing way the psychological issues that cancer patients face. It will serve as a guide to help cancer patients anticipate feelings and stages of the coping process. It will help demystify the uncertain path of cancer survivorship.
When Someone You Love Has Cancer-A Dell Caregiving Guide
By Suzanne LeVert and Lynn Sonberg
Provides straightforward advice on how to obtain necessary information from doctors, foster a hopeful and supportive environment, cut through insurance red tape, carry out needed legal steps, and hospice information.
Surviving Cancer Emotionally-Learning How to Heal
By Roger Granet, M.D.
A consulting psychiatrist at Memorial Sloan-Kettering, Granet provides a wealth of information about many types of cancers and treatments such as surgery, radiation, chemotherapy and bone marrow transplants. But his central focus is the emotional toll of all aspects of the disease and the importance of seeking support from the many available resources to cope successfully.
The Human Side of Cancer: Living with Hope, Coping with Uncertainty
By Jimmie C. Holland and Sheldon Lewis
Jimmie C. Holland, M.D., of Memorial Sloan-Kettering Cancer Center, explores the broad range of emotions people with cancer and their loved ones experience from the moment of diagnosis through the treatment and its aftermath.
U.S. National Library of Medicine
National Institute of Health
PubMed comprises more than 20 million citations for biomedical literature from MEDLINE, life science journals and on-line books. Provides quick access to medical research through the National Library of Medicine.
National Coalition for Cancer Survivorship (NCCS)
1010 Wayne Avenue
Silver Spring, MD 20910
The oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors.
Living Well After Cancer Program
Abramson Cancer Center, University of Pennsylvania
Linda Jacobs, PhD, RN, Program Director
Lance Armstrong Foundation Adult Survivorship Clinic
Dana-Farber Cancer Institute
Ken Miller, MD, Program Director
Fred Hutchinson Cancer Research Center
K. Scott Baker, MD and Karen Syrjala, PhD
Co-Directors, Survivorship Program
Memorial Sloan-Kettering Cancer Center Survivorship Program
New York, NY
Mary McCabe, RN, MA, Program Director
The Survivorship Center
Ohio State University Comprehensive Cancer center-James Cancer Hospital and Solove Research Institute Columbus, Ohio
Barbara Andersen, PhD, Program Director
UCLA’s Jonsson Comprehensive Cancer Center
Los Angeles, CA
Patricia Ganz, MD, Program Director
Allison Jones, ND, Program Director
Carolina Well Survivorship Program
University of North Carolina at Chapel Hill
Lineberger Comprehensive Cancer Center
Chapel Hill, NC
Marci Campbell, PhD and Don Rosenstein, MD
Co-Directors, Carolina Well Survivorship Program
Air Care Alliance
A nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This site lists groups who volunteer to fly in support of health care initiatives, patient transport, disaster relief, environmental support, and other missions of public service.
Air Ambulance Angels (Air Compassion America)
Air Compassion America® is a non-profit patient advocacy/assistance organization established to help locate and coordinate bed-to-bed air ambulance service. No-charge assistance to families in need.
Air Ambulance Flight
Provides worldwide air ambulance flights for the sick and injured. Specializes in flights that originate or finish in Europe. (Commercial.)
While not free, this Arizona-based company offers assisted medical flights at very reasonable prices compared against typical medical flight where the patient must pay. (Commercial.)
Long distance motor coach or bus transportation for patients at no cost.
Angel Flight, Inc. People Flying People in Need
A non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks. Angel Flight is a member of Air Care Alliance, a group of 37 organizations providing similar services throughout the United States. These groups are coordinated through a toll-free service (NPATH) that helps individuals in need find assistance in their area.
Angel Charity Network
Provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis. This is a network of volunteer pilot organizations – nationwide.
Angel Flight at NIH
For patients in medical and financial need who need to travel to the NIH Clinical Center in Bethesda, Maryland. Arranges charitable airline flights for patients involved with NIH clinical trials; rare disease or rare cancer treatment programs or clinical trials.
Corporate Angel Network
Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements.
FOOTPRINTS in the Sky
7375 South Peoria Street Suite #209, B-10
A 501(c)(3) non-profit corporation dedicated to providing flights to medical facilities throughout the United States for people in need of critical and life-saving medical care.
A private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs. (Local flights.)
Mercy Medical Airlift
The oldest and largest charitable medical air transportation non-profit in the United States. Free airline tickets for cancer patients and their escorts are available year around. (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants.
National Patient Air Transport Helpline (NPATH)
Provides information about all forms of charitable, long-distance medical air transportation. Will refer cancer patients to Mercy Medical Airlift for free tickets.