Online Resources

Search by type of resource

Caregiver Resources, Clinical Trials, Prescription Drug Assistance, Support, Hospice, Hotlines and Forums, Insurance/Financial Assistance, Lodging, Lymphedema, Other Types of Melanoma, Pain Management, Radiation, Suggested Reading, Survivorship, Transportation


Caregiver Resources

National Family Caregivers Association (NFCA)

10400 Connecticut Avenue,
Suite 500
Kensington, MD 20895-3944

301-942-6430
800-896-3650
www.caregiveraction.org

Educates, supports, and advocates for the more than 50 million Americans who care for loved ones with a chronic illness, disability, or frailty. NFCA reaches across the boundaries of diagnoses, relationships, and life stages to address the common needs and concerns of all family caregivers.

Family Caregiver Alliance

180 Montgomery Street,
Suite 1100
San Francisco, CA 94104

415-434-3388
800-445-8106
www.caregiver.org

FCA seeks to improve the quality of life for caregivers through education, services, research, and advocacy. FCA’s National Center on Caregiving offers information on current social, public policy and caregiving issues, and provides assistance in the development of public and private programs for caregivers.

The Caregiver Relief Fund

900 South Wabash Avenue
Suite 603
Chicago, IL 60605

www.caregiverrelieffund.org

A social venture committed to caring for caregivers. Provides resources, assistance and a voice to over 50 million Americans who are currently caregivers to the chronically ill, aged and disabled.

Strength for Caring

The Johnson & Johnson Caregiver Initiative is a pioneer in the emerging field of family caregiver support and StrengthForCaring.com (SFC) is the cornerstone of this important program. SFC is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.

4th Angel

9500 Euclid Avenue R36Cleveland, OH 44195

www.4thangel.org

The 4th Angel Program is part of the Scott Hamilton CARES Initiative. This is a free, national service which provides a one-to-one supportive relationship (phone or email based) to cancer patients and their caregivers. The program has over 400 patient and caregiver mentors who are at least 6 months post treatment, and continues to train more mentors.

Caregivers4Cancer

P.O.Box 153448
Irving, Texas 75015

972-513-0668
Caregivers4cancer.com

Organization strives to educate and assure caregivers and oncology teams there are ways to ease the journey’s relentless demands. Goal is to help caregivers emerge on the other end with less stress, more energy and a feeling of accomplishment that they did all they could for their loved ones.

Caregiver.com

3350 Griffin Road
Fort Lauderdale, FL 33312

954-893-0550
1-800-829-2734
www.caregiver.com

A leading provider of information, support and guidance for family and professional caregivers. Founded in 1995as a producer of Today’s Caregiver magazine, the first national magazine dedicated to caregivers. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.


Clinical Trials

ClinicalTrials.Gov

The National Cancer Institute at the National institute of Health
Bethesda, Maryland

1-800-4-Cancer
www.clinicaltrials.gov

A registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.

Oncolink

Abramson Cancer Center of the University of Pennsylvania
3400 Spruce Street
2 Donner
Philadelphia, PA 19104

215-349-8895
www.oncolink.org

Comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances. Information is updated every day and provided at various levels, from introductory to in-depth.

Dermatology & Early Detection

Center for Disease Control (CDC) Centers for Disease Control and Prevention
4770 Buford Hwy NE
MS K-64
Atlanta, GA 30341

800-232-4636
cdcinfo@cdc.gov
www.cdc.gov

Federal agency that provides information on cancer prevention and control.

American Academy of Dermatology

930 E. Woodfield Road
Schaumburg, IL 60173

1445 New York Avenue, NW, Suite 800
Washington, DC 20005

(866) 503-SKIN (7546)
International: (847) 240-1280
www.aad.org

Founded in 1938. With a membership of more than 17,000, it represents virtually all practicing dermatologists in the United States, as well as a growing number of international dermatologists. Find free screening locations as well as information on research, diagnosis and treatment.

DermWeb

The Department of Dermatology and Skin Science
University of British Columbia
835 West 10th Avenue
Vancouver, B.C.
Canada V5Z 4E8

604-875-4747
www.DermWeb.com

DermWeb is a premier destination for dermatology links and resources on the Web. There are several areas of interest for practicing dermatologists, for dermatology students, and for the general public.

The Skin Cancer Foundation

149 Madison Av.
Suite 901
New York, NY 10016

212-725-5176
1-800-754-6490 (1-800-SKIN-490)
www.skincancer.org

Educates about skin cancer and its prevention by means of sun protection; as well as the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer, now occurring at epidemic levels.

National Cancer Institute

6116 Executive Boulevard, Suite 300
Bethesda, MD 20892

1-800-422-6237 (1-800-4-CANCER)
TYY: 1-800-332-8615
www.cancer.gov


Prescription Drug Assistance

Needy Meds, Inc.

P.O. Box 219
Gloucester, MA 01931

1-978-281-6666
www.needymeds.org

This service provides information on drugs and offers applications (if available) for financial assistance, coupons for drugs, discount drug cards, free/low cost clinics and government program information.

Together Rx Access Card

(800) 444-4106
www.TogetherRxAccess.com

Free prescription savings program for qualified enrollees, which provides savings on more than 300 FDA-approved prescription drugs.

Partnership for Prescription Assistance

1-888-4PPA-NOW (1-888-477-2669)
www.pparx.org

This program helps uninsured and financially struggling patients get access to nearly 500 healthcare and prescription assistance programs that offer medicines for free or nearly free.

National Conference of State Legislatures

More than 30 states have programs that will give discounts on prescription drugs, often for free. Visit web site to learn more about the various programs state legislatures have developed.

RxAssist

111 Brewster Street
Pawtucket, RI 02860

401-729-3284
www.rxassist.org

Patient assistance programs run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles.

RxHope

P.O. Box 42886
Cincinnati, OH 45242

1-877-267-0517
www.RxHope.com

Advocate in making the patient assistance program journey easier and faster by supplying vital information and help.


Support

The Cancer Support Community

1050 17th Street, NW
Suite 500
Washington DC 20036

202-659-9709
cancersupportcommunity.org
help@cancersupportcommunity.org

An international non-profit dedicated to providing support to people affected by cancer. Services are available through a network of professionally led community-based centers, hospitals, community oncology practices and other non-profits, as well as online.

CanCare

Fighting Cancer with Hope
9575 Katy Freeway, Suite 428
Houston, Texas 77024

713-461-0028
1-888-461-0028
www.cancare.org

Cancer survivors of more than 50 different types of cancer volunteer for CanCare to provide emotional support to those currently facing a battle with cancer. Family members of survivors provide emotional support to family members of cancer patients.

Caring Bridge

1715 Yankee Doodle Road
Suite 301
Eagan, MN 55121

651-452-7940
651-681-7115
www.caringbridge.org

Free, personal and private websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.

MyLifeLine.org Cancer Foundation

55 Madison St., Ste. 750
Denver, CO 80206

303-549-0405
www.mylifeline.org
support@mylifeline.org

A 501(c)(3) nonprofit organization that encourages cancer patients and caregivers to create free, customized websites. Our mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.

CancerCare

275 Seventh Ave. Floor 22
New York, NY 10001

1-800-813-HOPE (4673)
info@cancercare.org
www.Cancercare.org

National Office serves people with cancer and their loved ones throughout the entire 50 states, Puerto Rico, and the U.S. Virgin Islands.

Healthfinder.gov

P.O. Box 1133
Washington, DC 20013-1133

healthfinder@nhic.org

Write to healthfinder.gov at Health and Human Services Department for easy entry point to trustworthy health information.

National Cancer Institute (NCI)

1-800-4-cancer
www.cancer.gov

Very comprehensive information from the US Government agency wing of the National Institute of Health (NIH).

Web MD

A medical education site from a company that helps both consumers and healthcare providers navigate the healthcare community.


Hospice

HospiceNet

401 Bowling Avenue, Suite 51
Nashville, TN 37205

www.HospiceNet.org
info@hospicenet.org

Provides information and support to patients and families facing life-threatening illnesses.

Hospice Education Institute

3 Unity Square
Machiasport, Maine 04655

800-331-1620
207-255-8800
www.hospiceworld.org

Provides information and education about caring for the dying and the bereaved. Contact for information about good hospice and palliative care; to get referrals to hospices and palliative care organizations in the USA, to discuss issues relating to caring for the dying and the bereaved.

HFA Hospice Foundation of America

1710 Rhode Island Ave, NW
Suite 400
Washington, DC 20036

National Hospice Foundation

1731 King Street, Suite 200
Alexandria, Virginia 22314

Caring Connections

800-658-8898
Multilingual Line: 877-658-8896


Hotlines and Forums

Melanoma International Foundation

1-866-463-6663
Toll free Patient and Family Helpline Forum: Melanoma Forum

Dana Farber Cancer Institute

Family Studies Cancer Risk Line
Voice: 1-800-828-6622
www.dana-farber.org

Information regarding familial cancers

Patient Advocate Foundation

1-800-532-5274 (Mon.-Thurs., 8am-8pm; Fri., 8:30am-7pm EST)
www.patientadvocate.org

Provides education and legal counseling to cancer patients (relative to a diagnosis) concerning managed care, discrimination, insurance and financial issues.

Hereditary Cancer Center

1-800-648-8133 (Mon.-Fri., 8am-5pm CST)
www.medschool.creighton.edu

Studies family-linked cancer. Counseling, information on clinical trials, cancer and hereditary factors.

Cancer Information Service

Sponsored by National Cancer Institute.
1-800-422-6237
www.cancer.gov

Provides information about cancer and cancer-related resources to patients, the public and health professionals. Offers one-on-one smoking cessation counseling and literature. Free publications.

Skin Cancer Foundation

1-800-754-6490 (Mon.-Fri., 9am-5pm EST)
www.skincancer.org

Provides educational materials and information on skin cancer and treatment.

Cancer Research Institute

1-800-992-2623 (Mon.-Fri., 9am-5pm EST)
www.cancerresearch.org

Provides general cancer resource information. Supports leading-edge research aimed at developing immunologic methods of preventing, treating and curing cancer.

Cancer Information and Counseling Line

1-800-525-3777
(Mon.-Fri., 8:30am-5pm MST)

Provides current medical information and counseling for cancer issues.

Cancer Hope Network

1-877-467-3638 (Mon.-Fri., 9am-5:30pm EST)
www.cancerhopenetwork.org

One-on-one support offered to cancer patients and their families undergoing cancer treatment from trained volunteers who have survived cancer themselves.

BLOCH Cancer Hotline

1-800-433-0464

Networks persons with cancer and home volunteers with same type of cancer. Free books about cancer.


Insurance/Financial Assistance

Chronic Disease Fund

6900 N Dallas Pkwy,
Suite 200
Plano, TX 75024

877- 968-7233
www.cdfund.org

CDF exists to improve the health and quality of life of patients battling chronic disease, cancer or other life-altering conditions who cannot afford the medications they so desperately need.

HealthWell Foundation

P.O. Box 4133
Gaithersburg, MD 20878

800-675-8416
www.healthwellfoundation.org

The HealthWell Foundation® provides full or partial financial assistance to eligible individuals who cannot afford their insurance co-payments, premiums, deductibles for certain treatments, and other out-of-pocket health care expenses.

Medicare & Medicaid

7500 Security Blvd
Baltimore, MD 21244-1850

800-MEDICARE
www.medicare.gov

Medicare is a federal system of health insurance for people over 65 years of age, low-income individuals and for certain younger people with disabilities.

National Patient Advocate Foundation (NPAF)

725 15th St, NW, 10th Floor
Washington, DC 20005

202-347-8009
www.npaf.org

NPAF provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.


Lodging

Joe’s House

505 E 79th Street
New York, NY 10075

877-563-7468
www.joeshouse.org

Joe’s House website lists thousands of places to stay across the country near hospitals and treatments centers that offer a discount for traveling patients and their loved ones.

National Association of Hospital Hospitality Houses (NAHHH)

P.O. Box 1439
Gresham, OR 97030

800-542-9730
www.nahhh.org

NAHHH serves facilities that provide lodging to patients and families during medical emergencies. Features list of homes located in the US.

Hope Lodge –American Cancer Society

Hope Lodge offers cancer patients and their caregivers a free, temporary place to stay when their best hope for effective treatment may be in another city. Currently, there are 31 Hope Lodge locations throughout the United States. Accommodations and eligibility requirements may vary by location.

Miracle House

Operating five three-bedroom apartments located in midtown Manhattan serving over 1,000 caregivers and patients each year. Miracle House provides temporary housing, meals, and advocacy to caregivers and patients coming to New York City for critical medical treatment.


Lymphedema

National Lymphedema Network

116 New Montgomery Street, Suite 235
San Francisco, CA 94105

1-800-541-3259
415-908-3681
www.lymphnet.org

A non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.


Other Types of Melanoma

Mucosal Melanoma

Oral Cancer Foundation
3419 Via Lido #205
Newport Beach, CA 92663

949-723-4400
www.oralcancerfoundation.org

The Oral Cancer Foundation is a non-profit 501 (c) (3) public service charity that provides information, patient support, sponsorship of research and advocacy related to this disease. At the forefront of our agenda is to promote solid awareness in the minds of the American public about the need to undergo an annual oral cancer screening and an outreach to the dental community to provide this service as a matter of routine practice.

Ocular Melanoma Foundation

P.O. Box 29261
Richmond, VA 23242-0261

www.ocularmelanoma.org

OMF aspires to be the top destination for up-to-date OM-related educational information, a meeting place, and advocacy resource. For doctors and researchers, OMF strives to be the connective tissue, facilitating interdisciplinary cancer research.


Pain Management

American Academy of Pain Management

The largest pain management organization in the nation and the only one that embraces an integrative model of care, which is patient-centered, focuses on the “whole” person, is informed by evidence, and brings together, all appropriate therapeutic approaches to reduce pain and achieve optimal health and healing. The Academy offers continuing education, publications, and advocacy.

American Chronic Pain Association

PO Box 850
Rocklin, CA 95677

1-800-533-3231
www.theacpa.org

Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life.

Pain Knowledge

A one-stop repository for print materials, educational resources, and physician tools across the broad spectrum of pain assessment, treatment, and management approaches.


Radiation

RT Answers

American Society of Radiation Oncology
8280 Willow Oaks Corporate Drive, Suite 500
Fairfax, VA

703-502-1550 or 1-800-962-7876
www.rtanswers.org

Web site explains to patients, their families and the public how doctors called radiation oncologists use radiation therapy to treat cancer safely and effectively.

Radiation Therapy Fact Sheet

National Cancer Institute
www.cancer.gov

A fact sheet that defines the different types of radiation therapy and discusses scientific advances that improve the effectiveness of this treatment.


Suggested Reading

Melanoma

Melanoma: Prevention, Detection and Treatment

By Catherine M. Poole and Dupont Guerry IV, M.D.

A complete and up-to-date guide for anyone newly diagnosed with melanoma and for others who are concerned about detecting and preventing it.

emotional-caregiver

The Emotional Survival Guide for Caregivers

By Barry J Jacobs

Jacobs gives wonderful advice for one of the hardest jobs in the world.

country-of-illness

In the Country of Illness : Comfort and Advice for the Journey

By Robert Lipsyte

Anyone who will ever have to negotiate the minefields of today’s medical system while suffering from a serious illness or caring for a loved one will greatly welcome this outstanding guide from the viewpoint of being a patient as well as a caregiver.

home-care-guide

The Home Care Guide for Cancer

By American College of Physicians

Written for a broad audience, this easy-to-use workbook was designed for home caregivers, patients, support groups, and education programs; it features easy-to-read type and an index for quick reference. The authors include oncology nurses, social workers, psychologists, physicians, family caregivers, and persons with cancer.

physicians-guide

A Physician’s Guide to Pain and Symptom Management in Cancer Patients

By Janet L. Abrahm, M.D.

This book is important for all dimensions of patient care — not just cancer. Every doctor in clinical practice needs this book. Every patient will benefit from it.

what-helped-me

What Helped Me Through: Cancer Survivors Share Wisdom and Hope

Edited by Julie K. Silver, MD

Hundreds of survivors from all walks of life share their heartfelt reflections and practical solutions for “getting through” the cancer journey.

mindful-way-through

The Mindful Way Through Depression

Mark Williams, John Teasdale, Zindel Segal, Jon Kabat-Zinn

A useful guide to achieving emotional balance. Comes with a companion CD of guided meditations.

dancing-limbo

Dancing in Limbo

by Glenna Halvorsen-Boyd and Lisa K. Hunter

Written by two cancer patients, one with melanoma; addresses in a refreshing way the psychological issues that cancer patients face. It will serve as a guide to help cancer patients anticipate feelings and stages of the coping process. It will help demystify the uncertain path of cancer survivorship.

when-someone-you-love-has-cancer-what-you-must-know-what-you-can-do-and-what-you-should-expect-a-dell-caregiving-guide

When Someone You Love Has Cancer-A Dell Caregiving Guide

By Suzanne LeVert and Lynn Sonberg

Provides straightforward advice on how to obtain necessary information from doctors, foster a hopeful and supportive environment, cut through insurance red tape, carry out needed legal steps, and hospice information.

surviving-emotionally

Surviving Cancer Emotionally-Learning How to Heal

By Roger Granet, M.D.

A consulting psychiatrist at Memorial Sloan-Kettering, Granet provides a wealth of information about many types of cancers and treatments such as surgery, radiation, chemotherapy and bone marrow transplants. But his central focus is the emotional toll of all aspects of the disease and the importance of seeking support from the many available resources to cope successfully.

human-side

The Human Side of Cancer: Living with Hope, Coping with Uncertainty

By Jimmie C. Holland and Sheldon Lewis

Jimmie C. Holland, M.D., of Memorial Sloan-Kettering Cancer Center, explores the broad range of emotions people with cancer and their loved ones experience from the moment of diagnosis through the treatment and its aftermath.

pubmed

PubMed

U.S. National Library of Medicine

National Institute of Health

PubMed comprises more than 20 million citations for biomedical literature from MEDLINE, life science journals and on-line books. Provides quick access to medical research through the National Library of Medicine.
www.PubMed.org


Survivorship

National Coalition for Cancer Survivorship (NCCS)

1010 Wayne Avenue
Suite 770
Silver Spring, MD 20910

301-650-9127 or 888-650-9127
www.canceradvocacy.org
info@canceradvocacy.org

The oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors.

Living Well After Cancer Program

Abramson Cancer Center, University of Pennsylvania
Philadelphia, PA
www.penncancer.org

Linda Jacobs, PhD, RN, Program Director
215-615-3371
linda.jacobs@uphs.upenn.edu

Lance Armstrong Foundation Adult Survivorship Clinic

Dana-Farber Cancer Institute
Boston, MA
www.dana-farber.org/For-Adult-Cancer-Survivors.aspx

Ken Miller, MD, Program Director
617-632-4LSF (4523)
LAFClinic@dfci.harvard.edu

Survivorship Program

Fred Hutchinson Cancer Research Center
Seattle, WA
www.fhcrc.org/patient/support/survivorship

K. Scott Baker, MD and Karen Syrjala, PhD
Co-Directors, Survivorship Program
206-667-2814
survivor@fhcrc.org

Memorial Sloan-Kettering Cancer Center Survivorship Program

New York, NY
www.mskcc.org

Mary McCabe, RN, MA, Program Director
212-639-2581
survivorship@mskcc.org

The Survivorship Center

Ohio State University Comprehensive Cancer center-James Cancer Hospital and Solove Research Institute Columbus, Ohio
http://cancer.osu.edu

Barbara Andersen, PhD, Program Director
614-293-6401
andersen.1@osu.edu

Survivorship Program

UCLA’s Jonsson Comprehensive Cancer Center
Los Angeles, CA
www.cancer.ucla.edu

Patricia Ganz, MD, Program Director
310-206-1404
Pganz@mednet.ucla.edu

Survivorship Program

University of Colorado Cancer Center
Denver, CO

www.ucdenver.edu
www.uch.edu

Allison Jones, ND, Program Director
720-848-0395
allisonjones@uch.edu

Carolina Well Survivorship Program

University of North Carolina at Chapel Hill
Lineberger Comprehensive Cancer Center
Chapel Hill, NC
www.carolinawell.org

Marci Campbell, PhD and Don Rosenstein, MD
Co-Directors, Carolina Well Survivorship Program
919-966-7230
campbel7@email.unc.edu


Transportation

Air Care Alliance

888-260-9707
www.aircareall.org

A nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This site lists groups who volunteer to fly in support of health care initiatives, patient transport, disaster relief, environmental support, and other missions of public service.

Air Ambulance Angels (Air Compassion America)

Air Compassion America® is a non-profit patient advocacy/assistance organization established to help locate and coordinate bed-to-bed air ambulance service. No-charge assistance to families in need.

Air Ambulance Flight

Provides worldwide air ambulance flights for the sick and injured. Specializes in flights that originate or finish in Europe. (Commercial.)

AirStar

While not free, this Arizona-based company offers assisted medical flights at very reasonable prices compared against typical medical flight where the patient must pay. (Commercial.)

Angel Bus

757-333-0084
www.Angel-Bus.org

Long distance motor coach or bus transportation for patients at no cost.

Angel Flight, Inc. People Flying People in Need

918-749-8992
www.angelflight.com

A non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks. Angel Flight is a member of Air Care Alliance, a group of 37 organizations providing similar services throughout the United States. These groups are coordinated through a toll-free service (NPATH) that helps individuals in need find assistance in their area.

Angel Charity Network

Provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis. This is a network of volunteer pilot organizations – nationwide.

Angel Flight at NIH

For patients in medical and financial need who need to travel to the NIH Clinical Center in Bethesda, Maryland. Arranges charitable airline flights for patients involved with NIH clinical trials; rare disease or rare cancer treatment programs or clinical trials.

Corporate Angel Network

1-914-328-1313.
www.corpangelnetwork.org

Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements.

FOOTPRINTS in the Sky

7375 South Peoria Street Suite #209, B-10
Centennial, CO

303- 799-0461

A 501(c)(3) non-profit corporation dedicated to providing flights to medical facilities throughout the United States for people in need of critical and life-saving medical care.

Lifeline Pilots

A private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs. (Local flights.)

Mercy Medical Airlift

800-296-1217
www.mercymedical.org

The oldest and largest charitable medical air transportation non-profit in the United States. Free airline tickets for cancer patients and their escorts are available year around. (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants.

National Patient Air Transport Helpline (NPATH)

800-296-1217
www.patienttravel.org

Provides information about all forms of charitable, long-distance medical air transportation. Will refer cancer patients to Mercy Medical Airlift for free tickets.